Datasets and reports

Research needs and priorities in end of life care

In 2013 Marie Curie Cancer Care initiated the Palliative and end of life care Priority Setting Partnership (PeolcPSP) with the James Lind Alliance to identify the research needs and priorities in palliative and end of life care for people who are likely to be in the last years of life, their families, and the professionals who work with them.

► James Lind Alliance Palliative and end of life care Priority Setting Partnership (PeolcP) webpage

Research needs and priorities in survivorship

The National Cancer Survivorship Initiative (NCSI), a collaboration between Macmillan Cancer Support and the Department of Health (England), through it’s research workstream commissioned an evidence review of the problems faced by cancer survivors.

► National Cancer Survivorship Initiative (NCSI) website

► Determining research priorities for cancer survivorship: consultation and evidence review, 2009 (PDF)

► Priorities for research on cancer survivorship, 2010 (PDF)

The Older People’s Health and Wellbeing Atlas

The Older People’s Health and Wellbeing Atlas allows you, through interactive maps and charts, to view selected indicators relating to older people at local authority and regional level for the whole of England.

► Older People’s Health and Wellbeing Atlas (external webpage)

Minimum Data Set for specialist palliative services

The Minimum Dataset for Specialist Palliative Services (MDS) is compiled annually by the National Council for Palliative Care, with the aim of providing an accurate picture of hospice and specialist palliative care service activity. These reports are available for purchase.

► Minimal Data Set for specialist palliative care services (external webpage)