Research tools

Guidance for evaluating complex interventions in end of life care: the MORECare project

The MORECare project set out to develop evidence-based guidance on the best methods for the design and conduct of research in end of life care research to further knowledge in the field. The 2013 MORECare statement provides 36 best practise solutions for research evaluating services and treatment in end of life care to improve study quality and set the standard for future research. Further papers based on the project have been published addressing specific issues such as ethics, mixed methods and statistics.

► MORECare statement, 2013 (PDF)

Marie Curie Palliative Care Research Centre courses

The Centre in Cardiff holds quarterly Research Methodology Clinics to provide advice and support to the research interests of academics, clinicians and other health professionals. They have also developed a Research Governance Toolkit – A guide for hospices.

►  Marie Curie Palliative Care Research Centre 

Mixed methods studies: a foundation for primary care research

‘Mixed methods studies: a foundation for primary care research’ by Jeffrey Borkan discusses the role of mixed methods in primary care research, and makes reference to many other key articles on the topic.

► Mixed methods studies: a foundation for primary care research, 2004 (PDF)

NIHR School for Social Care Research – end of life care research methods review

This review provides an overview of the range of research methods that have been commonly used in end of life care research and their relevance for social care.

► End of life care research methods review, 2012 (PDF)

Research questionnaires and tools from the Cicely Saunders Institute

The Cicely Saunders Institute of Palliative Care (CSI) at King’s College London has made available a series of questionnaires and tools that can be used in palliative care and rehabilitation research including the Palliative Care Outcome Scale (POS).

► Cicely Saunders Institute of Palliative Care (CSI) questionnaires and tools (external webpage)

► Palliative Care Outcome Scale (POS) website